Profound exhaustion

Since my stroke almost 3 years ago I have suffered from bouts of profound exhaustion after doing physical or mental work for more than about 20 minutes. No-one and I really do mean no-one seems to get it including medics, my wife, friends etc. They all say how well I look and assume I am fine. Well, I am definitely not right!

To be honest this gets me down. As hard as I try, this never seems to go away. I hate it.  In an ideal world I would rest more, but I know this is impossible.

I have great sympathy for others who have hidden disabilities: people may look fine on the outside but feel dreadful inside. This is how I am a lot of the time. Not always mind you. There are better days and times.