3 steps forward and 2 back?

This is the pattern my stroke recovery seems to take. Some days are good and I feel things are improving, only for this to be followed by a day or more when I appear to slide backwards.

Today has been a bad day: although food and drinks have gone down OK, I feel very giddy and tire easily. I very much hope I can overcome the giddiness. This and the uncomfortable sickness feeling in my stomach and food pipe are making life very hard.

If  I am honest, only sleep is a release.  Days are long and uncomfortable and I am sure no-one (not even my long suffering wife) understands just how miserable life still is for me. I very much want to be well again and able to do all the things I used to be able to do. But almost everything I do exhausts me. A slight bit of gardening and I am zonked out

I keep going because people tell me I will get better given time. God, I hope they are right as life as it is now is unbearable for too much longer.

Walking and balance

Today I managed to walk (with Lis) to the Cambridge Building Society, the Bank, Budgen's store, the Post Office and a friend's house - Jenny Mansell's - which for me, in my current state, is a long way.  For me, it is not the walking as such that tires me, rather it is because I get giddy (poor balance following my stroke) and THIS tires me. Quite often I feel like I've drunk 8 pints of beer, when I haven't had ANY alcohol now for over 6 months. I am told that the brain finds new pathways and ways of managing, but it will take time.

I have the feeling that after the weekly physio sessions in Ely yesterday the giddiness was slightly better, so the more exercise I do the better? Today I have reduced my liquid (peg) feed down from 900ml a day to 800ml which will reduce the time on the pump to under 7 hours.