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Tuesday, 18 March 2014

Bored with routine (stroke)

I am tied to my liquid feed for 7.25hrs a day: food fed directly into my stomach through what they call a peg feed. Luckily I can disconnect this if we go out for a walk but I am in my chair most of the day.  Although I now also eat food and drinks by mouth, these don't always go down too well. I am still trying to work out what affects this. Breakfast Weetabix and banana are the best and easiest to eat, maybe because I am less tired?

To be honest, my stroke is getting me down: same routine, still unable to be free of the peg feed and still feeling so giddy and exhausted after the smallest amount of physical exertion - it gets me down. I battle on in the hope of better times ahead.

Normality seems a distant dream: I long to do the things I used to do and to be able to eat and drink as I was once able to.

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